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Privacy Policy

To demonstrate our commitment to the privacy of your personal information, we have developed this privacy policy, which discloses our privacy practices for the information we collect at our web site located at the URL: www.bandagainstms.org (the “Web Site”). This privacy policy applies to our online collection, use and disclosure of personal information collected by us online within the United States. Personal information is information as more particularly described under applicable privacy legislation. This statement does not apply to information that is not personal information (or aggregated information that, by itself, does not permit the identification of an individual) or personally identifiable information not collected on this Web Site.

By using the Web Site you agree to be bound by the terms and conditions of this privacy policy. If you do not agree with the terms and conditions of this privacy policy, please do not use the Web Site.

Consent: Consent to the collection, use and disclosure of personal information may be given in various ways. Consent can be express (for example, orally, electronically or on a form you may sign describing the intended uses and disclosures of personal information) or implied (for example, when you provide information necessary for a service you have requested) or given, in some circumstances, where notice has been provided to you about our intentions with respect to your personal information and you have not withdrawn your consent for an identified purpose (such as by using an “opt out” option provided, if any). Consent may be given by your authorized representative (such as a legal guardian or a person having a power of attorney). Generally, by providing us with personal information, we will assume that you consent to our collection, use and disclosure of such information for the purposes identified or described in this privacy policy or otherwise, if applicable, at the time of collection. You may withdraw your consent to our collection, use and disclosure of personal information at any time by contacting us as indicated below, subject to contractual and legal restrictions and reasonable notice. Note that if you withdraw your consent to certain uses of your personal information, we may no longer be able to provide certain of our products or services.

Disclosure Required by Law or to Third Parties: Please note that if you provide any information on your own or directly to parties who provide services to or connected with our Web Site, different rules may apply to their use or disclosure of your personal information. When you make a donation to us using via links contained on this web site, such donation is effected via a thirdparty service. We encourage you to investigate and ask questions before disclosing information to third parties. Although your privacy is very important to us, due to the existing legal regulatory and security environment, we cannot fully ensure that your personal information will not be disclosed to third parties. For example, we may be forced to disclose information to the government or third parties under certain circumstances, or third parties may unlawfully intercept or access transmissions or private communications. Additionally, in the unlikely event that either we or a government entity need or needs to investigate or resolve possible problems or inquiries, we may be required to disclose any information about you to private entities, law enforcement or other government officials as we, in our sole discretion, believe necessary or appropriate. The existence of a link between our Web Site and other third party sites does not imply an endorsement of these other sites. We are not responsible for the content of such other sites, nor for the treatment of personally identifiable information might you provide while visiting such other sites.

Personal Information Collected and Used: Users may browse through the informational portion of our Web Site without providing us with any personal information. However, if you choose subscribe to our newsletter, we will ask for your contact information, such as your name and email address.

Cookies: We, from time to time, may use “cookies” on this Web Site. Cookies are small text files that your web browser leaves on your hard drive to recognize you as a repeat user of our Web Site, track your use of our Web Site and perhaps even target advertising to you. This allows for personalization of certain aspects of your visit to our Web Site. Information gathered from cookies in this way is only used on an aggregate basis. Unless a visitor specifically provides their identity to us, e.g., by providing information through an online form or sending us correspondence from the Web Site, we will not know who the individual visitors are. We may use cookies to store preferences; record session information; develop information about Web Site visitors’ preferences and interests; record past activity at a website in order to provide better service when you return to our Web Site; or customize web page content based on information you voluntarily provide. You can disable cookies using your Internet browser settings. You will also configure your browser to notify you when a cookie is sent. Please consult your browsers’ help function for information on how to disable cookies. Note that if you disable cookies, certain features of our Web Site may not function properly.

IP Address: When you visit the Web Site, our web servers may automatically collect limited information about your computer’s connection to the Internet, including your IP address (which is a number that lets computers attached to the Internet know where to send you data). Your IP address does not identify you personally. We log your IP address to (i) deliver our web pages to you upon request; (ii) tailor our Web Site to the interests of our users; (iii) help diagnose problems with our server; (iv) administer our Web Site in order to constantly improve the quality of the Web Site; (v) measure traffic within our Web Site; and (vi) prevent fraudulent use of the Web Site by others. We may also track what we call a Customer Identification Number (“CID”), located within our URL, to determine the website from which you navigated to get to this Web Site. This CID number does not contain personally identifiable information, and the CID number may not be apparent to you. We may also track and analyze non-identifying, aggregate usage and volume statistical information from our visitors and users.]

Modifying Your Personal Information and Security: You can access and update your personal information by contacting us. If you wish to delete your personal information, please contact us to request deactivation of your information. If you delete such information, it cannot be used by us or disclosed to third parties in the future. However, even if you delete or change some personal information in our registration database, it may still be stored on other databases (including those kept for archival purposes). Also, because we need to have certain of your personal information in order to deliver our services, you will not be able to receive such services (such as our newsletter) if you delete such personal information.

Changes to this Policy: Bandagainstms.com may amend or change this policy at any time. We will post any revisions to this policy on the Web Site, so that Web Site users are aware of these changes. Any User who provides personal information after these changes are posted or uses this Web Site after these changes are posted will be deemed to have accepted the revised policy. If at any point we decide to use personal information in a manner different from that stated at the time it was collected, we will send such person an email notifying them of such changes and giving them the option as to whether to allow us to use their information in this different way. Without such consent, we will use personal information in accordance with the privacy policy under which it was collected.

Notice to Parents Regarding Participation of Children and Teens: We want to help you guard your children’s privacy. In order to comply with the Children’s Online Privacy Protection Act, we will not knowingly accept “personally identifiable information” from children under the age of thirteen (13) through the Web Site newsletter registration procedures. Parents can review their child’s personally identifiable information, ask to have it deleted and refuse to allow any further collection of use of their child’s information. A parent wishing to do so should contact us through the contact information set forth below.

Disclaimer of Information and Advice: The goal of the Web Site is to provide information to patients diagnosed with MS and caregivers in an effort to educate them and enable them to more effectively advocate for themselves and participate in making decisions with their healthcare team and other professionals. It is not intended nor should it be construed as providing professional medical, financial or legal advice. The Web Site and the information contained on the Web Site are not a replacement for obtaining professional medical care or professional legal and financial advice. You should consult a trained medical professional for consultation, diagnosis and treatment of MS and any topic covered on the Web Site. You should consult a trained legal or financial professional for any document covering these topics. The Web Site is intended for personal use by individuals coping with MS, their caregivers and those interested in learning more about topics related to MS.

Users Outside of the United States: Our computer systems and some of the computer systems of our third party service providers are currently based in the United States, so your personal data will be processed by us in the United States where data protection and privacy regulations may not offer the same level of protection as in other parts of the world, such as the European Union. As a visitor from outside the United States, by using the Web Site you agree to this Privacy Policy and you consent to the transfer of all such information to the United States, which may not offer an equivalent level of protection of that required in the European Union or certain other countries, and to the processing of that information as described in this Privacy Policy.

We hope this policy clarifies our procedures regarding your personal information. If you have any questions, you may contact us.