Disclosure Required by Law or to Third Parties: Please note that if you provide any information on your own or directly to parties who provide services to or connected with our Web Site, different rules may apply to their use or disclosure of your personal information. When you make a donation to us using via links contained on this web site, such donation is effected via a thirdparty service. We encourage you to investigate and ask questions before disclosing information to third parties. Although your privacy is very important to us, due to the existing legal regulatory and security environment, we cannot fully ensure that your personal information will not be disclosed to third parties. For example, we may be forced to disclose information to the government or third parties under certain circumstances, or third parties may unlawfully intercept or access transmissions or private communications. Additionally, in the unlikely event that either we or a government entity need or needs to investigate or resolve possible problems or inquiries, we may be required to disclose any information about you to private entities, law enforcement or other government officials as we, in our sole discretion, believe necessary or appropriate. The existence of a link between our Web Site and other third party sites does not imply an endorsement of these other sites. We are not responsible for the content of such other sites, nor for the treatment of personally identifiable information might you provide while visiting such other sites.
Personal Information Collected and Used: Users may browse through the informational portion of our Web Site without providing us with any personal information. However, if you choose subscribe to our newsletter, we will ask for your contact information, such as your name and email address.
IP Address: When you visit the Web Site, our web servers may automatically collect limited information about your computer’s connection to the Internet, including your IP address (which is a number that lets computers attached to the Internet know where to send you data). Your IP address does not identify you personally. We log your IP address to (i) deliver our web pages to you upon request; (ii) tailor our Web Site to the interests of our users; (iii) help diagnose problems with our server; (iv) administer our Web Site in order to constantly improve the quality of the Web Site; (v) measure traffic within our Web Site; and (vi) prevent fraudulent use of the Web Site by others. We may also track what we call a Customer Identification Number (“CID”), located within our URL, to determine the website from which you navigated to get to this Web Site. This CID number does not contain personally identifiable information, and the CID number may not be apparent to you. We may also track and analyze non-identifying, aggregate usage and volume statistical information from our visitors and users.]
Modifying Your Personal Information and Security: You can access and update your personal information by contacting us. If you wish to delete your personal information, please contact us to request deactivation of your information. If you delete such information, it cannot be used by us or disclosed to third parties in the future. However, even if you delete or change some personal information in our registration database, it may still be stored on other databases (including those kept for archival purposes). Also, because we need to have certain of your personal information in order to deliver our services, you will not be able to receive such services (such as our newsletter) if you delete such personal information.
Notice to Parents Regarding Participation of Children and Teens: We want to help you guard your children’s privacy. In order to comply with the Children’s Online Privacy Protection Act, we will not knowingly accept “personally identifiable information” from children under the age of thirteen (13) through the Web Site newsletter registration procedures. Parents can review their child’s personally identifiable information, ask to have it deleted and refuse to allow any further collection of use of their child’s information. A parent wishing to do so should contact us through the contact information set forth below.
Disclaimer of Information and Advice: The goal of the Web Site is to provide information to patients diagnosed with MS and caregivers in an effort to educate them and enable them to more effectively advocate for themselves and participate in making decisions with their healthcare team and other professionals. It is not intended nor should it be construed as providing professional medical, financial or legal advice. The Web Site and the information contained on the Web Site are not a replacement for obtaining professional medical care or professional legal and financial advice. You should consult a trained medical professional for consultation, diagnosis and treatment of MS and any topic covered on the Web Site. You should consult a trained legal or financial professional for any document covering these topics. The Web Site is intended for personal use by individuals coping with MS, their caregivers and those interested in learning more about topics related to MS.
We hope this policy clarifies our procedures regarding your personal information. If you have any questions, you may contact us.